Hereditary Hemorrhagic Telangiectasia (HHT)
This is a disorder of the blood vessels, which gives me higher risk of stroke, nosebleed, hemorrhage, and other related difficulties. It also means that I am more susceptible to infection. HHT used to be called Osler Weber Rendu Syndrome. It is usually hereditary, through the female line in the family, and my mother has it as does her aunt. I found out that I had it after I got a stroke. I was rushed to the hospital, where they caught it on time, and have since altered my life accordingly. It was found that I had three lesions in my brain, and one in my lung. I have had brain surgery to glue one of the lesions that this is left on my brain. This actually took only about an hour, in which the doctors inserted a catheter into my groin, sending it up through a blood vessel and into my brain. I actually felt the catheter moving in my brain and asked them if that was what it was. They said, “Yes, now shut up!” I know that I will need additional surgeries to correct the other lesions. For the remaining lesions in my brain, they will not risk gluing again. Instead, they will use gamma radiation.